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I won't to into a billion details, for those of you familiar with IBD there is no cure but there is management of symptoms. We haven't been able to find true management of symptoms since she was diagnosed in August. We continue to work with our vet and will continue to do so.

Emotionally it is taking a toll on me. As someone who suffers from PTSD from slowly watching my sick mother die when I was 15, the daily triggers of this illness are hard to manage.

I just had to stop typing this as it sounded like she was getting sick in her crate so I took her outside and she ate grass, a staple of nausea in an IBD dog of course. I suspect she will vomit soon enough and hopefully she won't go into full flare up with the bloody stools which is the scariest part. We see the vet again tomorrow and hopefully we can wait that long, she was just at the ER two weeks ago with a major flare and it hasn't settled down yet. She can't take steroids which is a common treatment for IBD because she has a grade 4 heart murmur (managed well since 2009, hasn't gotten worse).

Is there a support group anyone knows for owners of dogs with IBD because watching her feel sick once a day or so just makes me so upset.
 

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Have you tried home cooking. A simple meal of say lean ground turkey and a couple of grated steamed veggies is what helped me get my hounds stomach settled.
 

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I have seen dozens of dogs with immune related GI disease treated with steroids successfully that also had heart murmurs, and some even with full blown Chronic Heart Failure. We always treat what needs to be treated most. If the IBS can be managed with diet, that is of course best, but many cannot. Steroid use alone does not always (or even often) worsen a dog's cardiac situation, particularly if it is not in heart failure. Might want to see a specialist and get their opinion.
 

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Have you tried home cooking. A simple meal of say lean ground turkey and a couple of grated steamed veggies is what helped me get my hounds stomach settled.
Thanks! We are looking into doing this now after another trip to the ER for dehydration and diarrhea yesterday. Vet, who I don't like, added a couple new meds but we are now shopping around for a holistic vet or a vet nutritionist as I think finding the right diet will be key here.
 

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I have seen dozens of dogs with immune related GI disease treated with steroids successfully that also had heart murmurs, and some even with full blown Chronic Heart Failure. We always treat what needs to be treated most. If the IBS can be managed with diet, that is of course best, but many cannot. Steroid use alone does not always (or even often) worsen a dog's cardiac situation, particularly if it is not in heart failure. Might want to see a specialist and get their opinion.
Thanks, she went on prednisone once before and the side effects were very bad so we are avoiding that at all costs. She was catatonic, shaking, had that 20 mile stare and kinda wobbly in addition to the constant need to drink and pee (at one time doing both). It was a bad experience but I understand the "treat what needs to be treated most part". She's on Atopica for her skin allergies but that also helps IBD and she's on a couple anti biotics but I think diet, probiotics and a few other changes will help balance things a bit. Shopping around for a good holistic or nutritional vet while we slowly distance ourselves from the "IBD expert" who has done nothing but put her on a food with the first two ingredients "corn starch, chicken by products" from a chicken based food she was eating all her life and messed around with some meds but doesn't seem to give a crap. I need someone who cares and will work with us even if they can't help that much. Right now we are getting "can't help that much and doesn't seem to care" and that double dip is getting old.
 
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