Rare Diagnosis - Seeking surgeon info

Go Back   Dog Forum > Keeping and Caring for Dogs > Dog Health

Rare Diagnosis - Seeking surgeon info

This is a discussion on Rare Diagnosis - Seeking surgeon info within the Dog Health forums, part of the Keeping and Caring for Dogs category; Hello, Thank you for taking the time to read this post. My wife and I have a 6 year old Australian Shepherd named Augie that ...

User Tag List

 
LinkBack Thread Tools Display Modes
Old 04-19-2017, 07:24 PM
  #1
Junior Member
 
Join Date: Apr 2017
Posts: 2
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Rare Diagnosis - Seeking surgeon info

Hello,
Thank you for taking the time to read this post. My wife and I have a 6 year old Australian Shepherd named Augie that we rescued 2 years ago. He recently started bleeding from the nose, and so we took him to our regular Vet. After performing an x-ray, it was discovered he had a mass growing in his nasal cavity. The radiologist theorized (based upon his observation) that it was malignant. Therefore we were referred to an oncologist.
Now, for us, this was sudden, and the possibility of it being cancer was devastating news. We do not have human children, and our family started out with a Black Lab puppy (Sebastian), followed by a St. Bernard puppy (Kali), and then finally a Pug puppy (Oliver). All 3 of them were rescues. Our lives were filled with happiness for 13 years. Then, tragedy struck, and we were forced to euthanize our beautiful Kali 3 years ago. About a year later, we rescued a beautiful, pitiful, heavily abused Augie. Then, at the beginning of last year, our little Oliver was diagnosed with Carcinoma in his mouth. While struggling to navigate our options, our cherished Sebastian's body gave out to what I assume is old age, and we had to euthanize him in February. While struggling with our loss, we were determined to leverage our love, prayers, and every other possible thing to save Oliver's life. Two weeks after Sebastian's passing, we took Oliver in for his first radiation treatment. We aren't quite sure what happened exactly, but the Oliver's little lungs were affected by the treatment, and two days after his first radiation treatment (16 days after losing Sebastian) we had to let our little white ball of stubborness go and euthanize him(even to this day, I miss that stubborness terribly).
I apologize for veering so far off topic. So, when faced with this diagnosis in Augie, terrible flashbacks of loss came pouring back in, along with the situation of Oliver's treatment and the outcome. The oncologist performed a biopsy and sent it off. We were told that 99.9% of all nasal tumors are malignant, and that it would be a one-in-a-million chance of it being anything else. While there, they also diagnosed a mild heart condition (the hits just keep coming). After a couple of agonizing days of waiting, we received a phone call telling us that the pathology report stated it was benign. Before celebrating, they wanted to take a bigger chunk just to make sure they hadn't just grabbed a random benign piece of an otherwise malignant tumor. The second test came back the same way. The oncologist said the findings were so rare, she was having a hard time naming the diagnosis. She finally settled on GRANULAR HYPERPLASIA AND FIBROSIS. We had received our miracle.
Now, the reason I am posting this. The tumor is roughly the size of an elongated kiwi (how he does not have any kind of facial distortion is beyond me). That is a pretty massive tumor in my mind. The surgery is going to be highly invasive, and apparently they found an abnormality in the underlying bone that needs to be investigated. I was wanting to know if anyone had any kind of guidance on where I can find any kind of objective (not subjective) information regarding skilled surgeons? In my daydreams, I am hoping I can find the "Gregory House M.D." of surgeons. I suspect this is a pipe dream, but we have to do everything we can. Augie had lived 3 years of hell before we adopted him (a couple of bullet wounds, hit by a car and left untreated, some teeth are wore down and missing where he was left in a cage and he tried to chew his way out). They even theorize that this growth may be a possible result of some trauma that that had enough force to cause a piece of the roof of his mouth to become lodged in his nasal cavity.
We live in Indiana, but distance is not an issue, and as far as cost is concerned, that is irrelevant. We are prepared to do whatever is necessary. Thank you for taking the time to read this, as well as any input/information you may provide.

- H
Trocar is offline   Reply With Quote
Old 04-20-2017, 03:55 AM
  #2
Senior Member
 
Lielu's Avatar
 
Join Date: Apr 2016
Location: South Africa
Posts: 300
Mentioned: 7 Post(s)
Tagged: 0 Thread(s)
I am so sorry you had to go through all of that! I wish I had the answer for you for the Gregory House of Doggy's. All I can offer is a lot of positive energy and wishing that you will find the right Specialist for your Augie. Keep us posted!
Lielu is offline   Reply With Quote
Old 04-20-2017, 09:04 AM
  #3
Dog Forum ModeraTHOR
 
jclark343's Avatar
 
Join Date: Aug 2013
Location: Florida
Posts: 9,233
Mentioned: 1658 Post(s)
Tagged: 0 Thread(s)
Wow, what a story! I can only imagine the emotional pain you much be going through.

Depending on what state you live in I would maybe consider reaching out to the state college's. I live in Florida and I know one of the best veterinary schools is the University of Florida. I imagine you would not want to have to fly Auggie at this time but research state vet schools.

Good luck, I hope you're able to find someone you feel comfortable with for such a major surgery.
jclark343 is offline   Reply With Quote
 
Old 04-20-2017, 10:41 AM
  #4
Senior Member
 
Laco's Avatar
 
Join Date: Dec 2015
Location: Southern California
Posts: 2,091
Mentioned: 32 Post(s)
Tagged: 0 Thread(s)
I know UC Davis in California, near Sacremento has a Veterinarian program, that is known to be one of the very best. You might contact them for recommendations, they could likely lead you to some very highly qualified Vet Surgeons.
Laco is offline   Reply With Quote
Old 04-20-2017, 01:47 PM
  #5
Junior Member
 
Join Date: Apr 2017
Posts: 2
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Thank you all for taking the time to read and respond to my post. I welcome any thoughts and ideas anyone has, and thank you for the ones posted. I have been in contact with someone at Cornell (the chief of Operations if my memory serves) which from what I read, is in the top 3 Vet schools in the world. While I was thankful for any kind of response (I had sent emails to approx 15-20 different Vet Schools in the country, and they were the only ones to respond), they basically told me they couldn't comment or provide any type of information due to liability reasons. We are very open to taking him to a Vet School program, but before I put him through the stress of travel and whatever additional tests they wish to run, I was hoping to get some form of "measuring stick" as to the talent that will be holding the scalpel. Initial surgical consult is calling for a 6 inch incision down his snout, and if I can find someone capable and progressive enough to perform the same surgery using a smaller incision, that would be awesome. But, I have a feeling that the kind of information I am seeking isn't out there.

Once again, thank you all for taking the time to read and respond.
-H
Trocar is offline   Reply With Quote
Old 04-20-2017, 03:03 PM
  #6
Dog Forum ModeraTHOR
 
jclark343's Avatar
 
Join Date: Aug 2013
Location: Florida
Posts: 9,233
Mentioned: 1658 Post(s)
Tagged: 0 Thread(s)
I can see why they wouldn't want you say they can or can't do something better then anyone else without seeing the dog and the x-rays. Maybe a consult with a second opinion would help? While it might be added stress, even if their surgical plan is the same as the vet you currently have at least you would have confirmation that your surgeon's plan is the best out there. Just a thought.

Good luck on your decision. I know it can't be an easy one.
jclark343 is offline   Reply With Quote
Old 04-20-2017, 10:35 PM
  #7
Senior Member
 
Join Date: Feb 2015
Posts: 368
Mentioned: 5 Post(s)
Tagged: 0 Thread(s)
My experience wth nasal tumors are they are usually very slow growing... and though usually benign (don't spread) they are relentless, growing and growing and growing until something gets so distorted that it causes serious problems. Getting a diagnosis of granular hyperplasia and fibrosis is common when you do not get the center of the tumor, but the edges of it. I suspect the biopsies did not adequately describe the mass (a VERY common situation unfortunately), but if they do, that makes no sense... there is always a reason for such hyperplasia and fibrosis (basically scar tissue). Scar tissue does not form all by itself. Either way, seeking the assistance of an oncologist is definitely a good idea.

Before 'jumping' into surgery, however, I would definitely recommend a biopsy taken by the Oncologist (generally they have contact with a surgeon, or work with one, that can more accurately biopsy this mass)... THEN you will have a better idea of what to do next. Many times these deep nasal tumors are better candidates for radiation therapy than for invasive surgery (the sinuses are a very complex and do not heal all that great when chopped to pieces, nor to dogs tolerate that sort of surgery all the time).

I have had many clients who have opted to just do nothing, and the pets often survive fairly comfortably for another 6 months to a year before things get out of hand... though less time if there are endless nose bleeds. Either way, the growth seems so slow that most dogs tolerate the masses pretty well for some time.
lzrddr is offline   Reply With Quote
Dog Stairs - Dog Steps - Quality Pet Products
Reply



Thread Tools
Display Modes


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On

All times are GMT -5. The time now is 09:10 AM.


Powered by vBulletin® Version 3.8.8
Copyright ©2000 - 2019, vBulletin Solutions, Inc.
SEO by vBSEO 3.6.0 PL2
vBulletin Security provided by vBSecurity v2.2.2 (Pro) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.
User Alert System provided by Advanced User Tagging v3.1.0 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd. Runs best on HiVelocity Hosting.